Yesterday our GP called with the welcome news that between my last two scans there had not been any change. No growth. We will still receive visits from carers. We will have to change to a cheaper care agency. From there on we would have to pay for visits of carers, I will still need daily visits because I will be bed bound 24 hours a day.
Today, we learned that my case for home nursing care will no longer qualify for NHS funding. If we are going to continue with the same NHS paid carers it will cost 115 pounds a day. It is with Olga's assistance twice a day. Or 138 with complete care from care service. It is crazy. We are trying to review our schedule of care to reduce these numbers. Unfortunately our friend carer hasn't returned still from Ukraine where she went because of family matters.
Spent 10 days in the new Cockermouth comunity hospital. Doctors wanted to see if they could improve my mobility by changing my dose of medication. Increase of steroids to 8 mg, they were also concerned about Olga and I trying to cope without any help.They would not ley me return home until they are satisfied with conditions at home. So our front room had to become a bedroom complete with hospital bed on loan from the NHS. We also have a hoist for moving me around. Their intention is to manage my simtoms to make life as comfortable as possible. They do not advise further treatment or operation. they are afraid treatment may make things worth then they are. So for the present I will be bed fast invalid.
Posted on Sunday, May 04, 2014